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Can anyone recommend any good books for parents to read re: dyslexia.  Our son's mulitfactored evaluation (MFE)  results don't  label him dyslexic but when I seach the results from the school on the internet the word "dyslexia" keeps popping up.  He scored low on Speech/Language assessment  syntax difficulty and problems in phonemic awareness.  The school agreed to IEP for SLP next year. When we asked the school if he had dyslexia they all got a weird look on their faces and said well "thats a medical" term and it needs to be followed over so many years to make that determination.  I know some parents have recommended Earobics which I plan to look into as well as private Speech/Language over the summer.  We just don't know where to begin with this.

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Parent Replies to "Dyslexia...where to begin"

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michellea
michellea June 29, 2009
Re: Dyslexia...where to begin
I agree that independent private evaluations are often more comprehensive, compelling and diagnostic. Because the evaluator is not looking at the child through the lens of "what the school can provide", the recommendations are often more complete.

That said, under the law, schools must only "consider" outside evaluations". They are not required to adopt every recommendation. It will be up to the parent as an equal team member to present the evaluation (with or without the help of the evaluator) and collaborate to build an appropriate IEP. Some schools are more open to suggestions of outsiders than others.

Once the IEP is developed, the parent's work does not end. parents must insure that the IEP is implemented as intended. This means making sure that accommodations are given, services are provided etc. Sometimes this is difficult to track. I've seen situations where a child has small group OG tutoring in their schedule, but the OG teacher is either poorly trained, the size of the "small" group is unmanageable, and the program is not implemented properly.

By becoming educated in the disability, instructional methods and special ed process, a parent is more equipped at collaborating with the team and holding the school accountable.
fujiyama66
fujiyama66 June 26, 2009
Re: Dyslexia...where to begin
Hi, I recently had my daughter formally diagnosed with Dyslexia and ADHD. It is to your benefit to have your child evaluated by "outside" experts. Outside of the school system I mean. You can give them the documented confirmation of the formal diagnosis once you have it. If it is a thorough one it will include an psychological eval and an educational eval. They are both important. Especially the educational eval, as it will tell how your child learns best. It is important to know where their weaknesses are and equally important to know what their strengths are and how they learn...auditory, or visual...etc. Once you have the evals, and I would also do a speech and language eval too, as dyslexia is a neurological, brain and language based disorder. If caught early enough and the child is given systematic, thorough tutoring such as the Orton Gillingham method, your child can make huge strides and even catch up to his/her peers. However, they will always struggle as there is no "cure" for dyslexia. Also, be sure to explain to your child that there are many brilliant people such as Einstein,Leonardo Da Vinci and Thomas Eddison etc that were dyslexic and ADHD. It just means that they have a learning difference. An excellent book recommended to me by my evaluator is "Overcoming Dyslexia" By Sally Shaywitz, M.D. It has been invaluable to me. Also, make sure the school attaches the formal evaluations to the IEP as it is a legal document. Good Luck
tattles
tattles June 5, 2009
Re: Dyslexia...where to begin
Fantastic.....thank you so very much for all of the info. After looking at the explanation of the deficient areas noted on our son's MFE and searching the info on this site I have come to the conclusion it is dyslexia. I am moving forward to help my child in any way possible after two long years of tears and anxiety over school. My deepest gratitude for all the info. Please keep it coming....
healthy11
healthy11 June 4, 2009
Re: Dyslexia...where to begin
Yes, as Michellea mentioned, Earobics can be helpful for certain types of CAPD. One of my favorite experts on the topic is Dr. Jeanane Ferre, and a very good summary of one of her seminars can be found at the link below (she also lists other ways to help kids with different types of CAPD): ocslha.com/Ferre.htm
michellea
michellea June 4, 2009
Re: Dyslexia...where to begin
Hi buckaroo - glad to see you again!

Earobics can help certain sub-types of CAPD or APD. Here are a couple of links that may help.
shawny.org/APDSurveyresults.htm
www.nswagtc.org.au/info/articles/PittelkowCAPDSubCategories.html

Good luck!
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Any contributed content above is the subjective opinion of that member or external author, and not of GreatSchools. GreatSchools does not check for accuracy in community posts or verify the contributor’s identity. If you are searching for health-related advice we strongly suggest you seek professional medical support. View our Community Guidelines for more details.

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